Before I get into a chiari related post, I just have to say one thing.
Just received a press release for Flaunt Magazine’s Art Basel group show. There’s
going to be a private performance piece by Vanessa Beecroft, in collaboration
with Kayne West. Oh Lord, please no! Marina Abramovic and Jay-Z’s were bad
enough! I’m so glad I’m not going to be in Miami this year.
Back to the chiari
Fell of the blog last week. Had a bit of time off work, and my body let
me know loud and clear that I’m getting worse. I’m getting closer to what I
fear the most. Ok, maybe not the most, but it ranks higher than zombies and
gremlins. Spent most of the week
horizontal, and staring at my iPhone. Time wasn’t only spent reading Gawker,
Wonkette and Blink on Crime. Found myself pouring over chiari pages and
searching for any more tidbits of info I could get.
So you’ve now heard my little recap on ailments. Here are some links
to support and also much more in depth information on Chiari Malformations.
There are so many diverse symptoms and not everyone will have them all. I’ve
seen some people liken the diversity to a box of chocolates since you never
know which one you’re going to get. Another thing I’ve noticed on chiari
support pages, is an abundance of posts by women. This got my curiosity and my
googling up. According to the Chiari Institute, women are affected three
times more than men. Just what we need, another affliction that leans toward
females.
Since so many doctors have little or no knowledge of chiaris, it’s
best to arm ourselves with more than a little bit of knowledge. Below are just
a few links, but there are many more out there.
links to informative sites and pages dealing with Chiari
Malformations:
http://www.conquerchiari.org/index.html
http://www.conquerchiari.org/index.html
more information and support
information and a great way to explain to anyone what it’s like to
live with an invisible illness.
http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/
#chiari #invisibleillness
#chiari #invisibleillness
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